Recently, I purchased Charlotte's Web hemp extract through Realm of Caring, a company that specializes in producing medicinal marajuana products such as endocannabinoids. The hemp strain used to extract the oil is the same as that featured in the Sanjay Gupta CNN special report on the medicinal uses of marajuana for seizure control. It is a strain that is high in CBD content and very low on THC hence making it not so alluring for recreational use but extremely potent in its effect on neurogenerative disorders such as seizures, autism, cerebral palsy and other brain related disorders. In fact, the product is named after a little girl, Charlotte, in the documentary whose seizures were almost completely reduced after taking the oil. Anecdotal studies show it helps in seizure control, tics brought on by Cerebral Palsy and mitigates symptoms brought on by other neurodegenerative disorders.
No studies are currently underway to see the benefits of endocannabinoids in neurodevelopment in cases such as autism. I have relayed contact information for GW pharmaceutical's [a British company that currently supplies pure endocannabinoids for clinical trials at UCSF and New York University] public relations director to Dr. Gargus, director of the new Center for Autism Research and Treatment center at UC Irvine to possibly start a line of clinical trial studies to see its effect on autism. I am not sure what he did with the lead; hopefully, one of his colleagues has grabbed the idea and is running with it. Anecdotal stories of endocannabinoids having neurogenesis effects is the bit of hopeful information that led me to run out and get the hemp oil extract for Luki's Dup15q syndrome.
I am quite surprised by how easily accessible it is to get this stuff. I just ordered online even without a prescription from a "weed doctor". This just goes to show how safe the product is and even with over dosage, there is no need to call poison control unlike most prescription antiepileptic drugs currently on the market.
Mr.L is currently on day 3 of use. I am slowly titrating it up from 5 drops a day to 10. Recommended usage on the bottle suggests 30-40 drops a day, three times a day. Not sure if this recommended dosage is for seizure control but I plan to just give 5 drops b.i.d. and see what, if any, cognitive progress he makes. As for cost, the 200 mg bottle cost $50. I have read somewhere that in order to get successful seizure control, $100-$600 per month would be the cost for treatment, depending on the patient. 10 drops a day may last a month or two.
We are not seeing any effects, yet, of course, it is too early. But, maybe in a week or a month, a light bulb will go off in his little head. Crossing my fingers and hoping for the best.
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