Wednesday, December 9, 2020

Not for the Faint of Heart. Seizure Log November 7, 2020

 Lucas' seizures have recently made a comeback with a vengeance.  On the 7th, he had a cluster of 15 seizures in a span of two hours with vomiting three times in between.  We held his morning dose of lamictal 25 mg and are not sure if this is the cause of his cluster seizures.  Recent blood lamictal level came back at therapeutic range  but it is in the low end so we have room to increase dosing (he is at 2.7 and therapeutic range is 2.5-15).  I hate the prospect of having to give him more meds so we are going to see if getting his lamictal on schedule will help stop the cluster seizures.  

I worked a full 12 hour night shift and slept for about 4 hours and came downstairs to find Lucas starting his seizures immediately. We had declared a nursing colleague's dad dead from COVID and I was already emotionally drained.  Of course, management asked if we could stay 4 hours overtime.  The nursing staff are strained right now with COVID hospitalizations skyrocketing.  Every week I go back to work, another unit seems to have converted into the COVID unit.   I was tired, hungry, groggy and not in the mood to do more of nursing which I had been doing all night with COVID patients in the step down unit.  But there I was, an emotional mess as I tried to capture every seizure on video for the neurologist.  


After viewing the video, Lucas' neurologist said these seizures were frontal lobe seizures.  According to Lucas EEG from a few years back, it showed right frontal and left central/temporal sharp waves indicative of complex parital seizures.  He described these seizures as frontal lobe complex partials.   The frontal lobe is responsible for cognition and higher thinking. temporal lobe for memory and speech.  This explains why he is nonverbal and has cognitive delays.  But really, I think the whole brain may be affected.  

For now, we will stay put with no med increase and continue to monitor.  


One year report for Lucas Agn
Date created: December 09, 2020 
Start Month: January 2020
End Month: December 2020
Weight: 44 lbs. (as of November 22, 2020)
Birth date: May 19, 2011
Current Medications:
Banzel 10.00 mL Daily
Banzel 10.00 mL Daily
Lamictal 25.00 mg Daily
January, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
February, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
March, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
April, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
May, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
June, 2020
Week 11
Week 23
Week 30
Week 44
Total:8
July, 2020
Week 10
Week 20
Week 30
Week 40
Total:0
August, 2020
Week 10
Week 20
Week 30
Week 41
Total:1
September, 2020
Week 18
Week 27
Week 34
Week 42
Total:21
October, 2020
Week 12
Week 27
Week 34
Week 46
Total:19
November, 2020
Week 15
Week 25
Week 311
Week 40
Total:21
December, 2020
Week 114
Week 21
Week 30
Week 40
Total:15
abcdefhiklmnopqrstuvwxyzEvents logged0369121506121824302nd WK3rd WK4th WKJun 1st WK2nd WK3rd WK4th WKJul 1st WK2nd WK3rd WK4th WKAug 1st WK2nd WK3rd WK4th WKSep 1st WK2nd WK3rd WK4th WKOct 1st WK2nd WK3rd WK4th WKNov 1st WK2nd WK3rd WK4th WKDec 1st WK2nd WK3rd WK4th WKSeizuresBanzelLamictalSeizures in report period (December 2020 and the Eleven previous months)
abcdefhiklmnopqrstuvwxyzTimeNumber of Events02012am-2am2am-4am4am-6am6am-8am8am-10am10am-12pm12pm-2pm2pm-4pm4pm-6pm6pm-8pm8pm-10pm10pm-12am1271917236161020Events by time of day(includesevents in report period).
 
abcdefhiklmnopqrstuvwxyz8am-10am, 1710am-12pm, 212pm-2pm, 32pm-4pm, 610pm-12am, 08pm-10pm, 26pm-8pm, 104pm-6pm, 1612am-2am, 12am-4am, 24am-6am, 76am-8am, 19Events by time of day and percentageof total count in report period.
Total events in report period = 85