Tuesday, August 27, 2013

Our first annual IFSP meeting with Candy Sandoval.


Yesterday, our little family had our first annual IFSP meeting with our Regional Center case manager, Candy Sandoval.  We reviewed our goals for the coming year, educational concerns and the possibility of enrolling Luki in a Mommy and Me class for disabled children.  I was happy to learn that Luki has met two of the goals we planned out last year (holding his sippy cup independantly and eating finger foods).   When we planned out these goals last year, I have to admit I wasn't sure Luki would ever meet them.  I am so happy he has and surprised at how gradual was the process of him meeting these milestones. Our next goals are for him to walk independantly, use utensils for eating and be able to say mommy and daddy. 

The day programs offered to disabled toddlers are either a drop off or mommy & me sessions.  The drop off program is closest to our home but I am so hesitant to leave him alone as he still can't walk or talk.  The mommy and me program is offered in the campus of Cal State LA- a bit of a drive but it may be worth itt.  This also means wee have to reschedule all our therapy sessions - a feat hopefully which won't be too painful.

Candy also told us that with Luki's autism diagnosis, we may be able too stay with Regional Center long after he turns three years old when the school districts take over his care. I would like to ask Candy if we can somehow have hhim in the Rosemead school district - I heard such bad things about Montebello.  She also said we may be eligible for a medicaid waiver as a seondary insurance along with what we have right now, which is Kiaser.  This is such great news as it may mean we can rest assured in being able to take him to specialists outside of Kaiser network such as the Dup15 clinic at UCLA without having to worry about breaking bank.  It may also mean we can again take him to naturopathic doctors, too.

Now,we have to look forward to a meeting witth the school district (Montebello) in February , starting his mommy and me classes at Cal State LA and continuing all his therapies (ABA, OT, PT, ST, infant stim.)  These days Luki keeps busy in his splash pool.



Or, he is busy doing laps at the pool with daddy.


Update: during Luki's last ABM session, he walks on his hands! He has never done that before and the therapist said since walking on his feet and on his hand are next to each other in the brain,it will  translate   to him being better able to walk on h is feet soon.  I can't wait!


For now, so grateful Luki eats,poops, sleeps and plays well and is without seizures!  God willing, he will never have them!







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