Tuesday, February 19, 2013

February 19, 2013 - Luki's update

The geneticist, Dr. Abboy, has called us for the results of the microarray test.  We will be going in this Thursday at 10 AM.  I am hoping the duplication is minor but we will see what she says.  He also has a autism screening mid March with a developmental pediatrician.  I am not sure why they want to do this test right now.  The case manager of the Regional Center says that the result may not be accurate at this age.  The RC will do their own independant autism screening with a developmental psychologist when he turns 3.  The only reason I can find for this test now is that both RC and Kaiser are trying to get the other to foot the bill for services.  Financial reason is the motive, not the best interest for my son.
I also made an appointment with a naturopath, Dr. Karima Hirani in Culver City.  I am glad she is DAN certified and also an MD but not happy with her hefty hourly rate. She charges $400.00 an hour for the initial consultation and also we need to pay for any extra labs and supplements she orders.  I'm glad Gabriel set aside the maximal amount for his healthcare expense account this year.  We may be using all of it for Lucas this year.
I've also initiated a facebook support group for the Evergreen Church's Journey support group. I've had this strange urge to attend that church about a month before Lucas' diagnosis.  The church is right across the street from home but I never had this kind of urge to go before.  I believe it was the holy spirit guiding me to be a part of the Journey's group.  Thank God Gabriel didn't think I was crazy and humored me by going with me to church.  I think he is getting alot out of the meetings,too.  
On a more positive note, Lucas is more responsive to speech and sound.  He likes to giggle to the sound of "ribbit ribbit" and "gorilla".  He giggles when he gets to the page when the gorilla shows up in his animal book.  I put his hand over mine and tap my mouth while I make Indian sounds.  He gets a kick out of that and now, every time I hold him, he puts his hand to my mouth.  So cute...  I am finding him to be more and more cuter every day.  I can't help but smile when I think of him.  And, I am amazed that he came through me.  I am so happy he chose me to be his mother.  

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